“Equal Opportunities, Fairness” Rare Diseases Week 2021

The fourteenth World Day of Rare Diseases is the last day of February each year. Due to the current situation, the programs will move to the online space in 2021 and the RIROSZ * – the National Association of People with Rare and Congenital Disorders – will announce the first Week of Rare Diseases as a series of programs. A one-day professional conference will also be organized for stakeholders. The aim is to create a platform where the relevant interest groups can discuss the situation and plans of people living with rare diseases together. The fact that the period of the first National Plan for Rare Diseases expired in 2020 gives a special topicality to the topic, so a new chapter will start now.