“Equal Opportunities, Fairness” Rare Diseases Week 2021

By: Trademagazin editor Date: 2021. 02. 26. 11:19

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There are millions of people worldwide with a rare and congenital disorder, and about 700,000 in Hungary. As more than half of those affected are newborns, infants and young children, these diseases have a major impact on the lives of family members and relatives in addition to patients. The main objective is to raise awareness among society and decision-makers worldwide about rare diseases and their impact on patients ’lives.

The fourteenth World Day of Rare Diseases is the last day of February each year. Due to the current situation, the programs will move to the online space in 2021 and the RIROSZ * – the National Association of People with Rare and Congenital Disorders – will announce the first Week of Rare Diseases as a series of programs. A one-day professional conference will also be organized for stakeholders. The aim is to create a platform where the relevant interest groups can discuss the situation and plans of people living with rare diseases together. The fact that the period of the first National Plan for Rare Diseases expired in 2020 gives a special topicality to the topic, so a new chapter will start now.